Thursday 31 May 2012

Zuclopenthixol acetate for acute schizophrenia and similar serious mental illnesses

Zuclopenthixol acetate is a tranquilliser and sedative that calms people down and helps them sleep.

People with schizophrenia or other mental health problems often hear disturbing voices or see distressing things (which are called delusions, hallucinations and psychosis). Such experiences can be frightening and may lead people to be aggressive or show violent behaviour toward themselves or other people. Tranquilising drugs are medications that help people to sleep or calm down, and help stop aggressive or disorganised behaviour. Tranquillisers should not have to be used often and also have few unwanted side-effects, such as pain at the injection site or uncontrolled shaking of the head and hands. Zuclopenthixol acetate is said to possess all these properties.

Read the full summary here:  http://summaries.cochrane.org/CD000525/zuclopenthixol-acetate-for-acute-schizophrenia-and-similar-serious-mental-illnesses

From a service user perspective (SUPER), the experience of hearing voices, being manic and seeing things can be confusing, frightening and sometimes terrifying.  It may be difficult for people to grasp what is ‘real’ and what is ‘delusion’.  People may have racing thoughts, which make you feel dizzy and something similar to vertigo.  Even your own thoughts and words may not seem to be your own, as voices or thoughts can sometimes feel as if they are inserted into your mind somehow by an outside force or person. 

If people’s voices are shouting at them, putting them down, being derogatory or abusive, then it is perhaps not surprising that people become aggressive and sometimes violent.  After all, if someone shouted at you in the street, many people would just shout back!  This is what it is like for people who hear voices or see things: it is like someone shouting straight into your ear and never going away. 

It may come as little surprise, then, that many people choose to shout back at their goading voices and this can be taken as being aggressive and violent.  No one can hear the voice, the verbal abuse or what the voice is saying, so an aggressive response to hearing an internal voice can seem to come from nowhere.  A service user that I met some time ago would often walk along the hospital corridors, screaming back at her voices.  She would sometimes hit herself violently on the head, as if trying to physically knock the voices out of her mind.  This was seen as aggression and unexplained violence by onlookers, but left me with mixed feelings of pity, consternation and fear.

Unfortunately, some people may become very aggressive or violent towards others.  They may have panic attacks or be in emotional turmoil.  Sometimes sedatives and tranquillisers are necessary to help people calm down (and some people even ask for them to help them cope). 

The use of these sedatives is never ideal, and the use of forced or coerced injection is a horrible experience, which is degrading both to the person being injected and unpleasant for the nurse doing the injection.  Forced injection can feel like a violation.  It can break the trust between the person with mental health problems and nurses.  Nurses want to provide therapy and care but at the same time have to deal with sometimes violent and aggressive behaviour, meaning that nursing work also has an element of social control.  This care/ control dichotomy (or split) is a catch- 22, with no clear winners or losers.  Nurses want to foster and build therapeutic relationships with people.  But all the time it takes to build up feelings of trust and intimacy can be broken in an instant, when force is used to restrain or inject the person.

In a mental health unit, with lots of beds and people, there is increased potential for friction and conflict between people.  I was unfortunate enough to witness the forced injection of sedatives on two occasions: the first time involving a young girl called ‘B’ who was trying to cut herself with the shards of a broken bottle; and the second time a man called ‘R’ who was violently kicking the door of the nurse station and shouting abuse at staff.  With the catch- 22 of care/ control, the use of sedatives could perhaps be said to be necessary but never ideal or therapeutic in the long term.

Seclusion, where an aggressive or violent individual is kept in their room is also far from ideal.  But seclusion may be better than the injection of sedatives and tranquillisers.  At the same time, nurses have a duty of care toward the individual and some people request tranquilisers to calm down.  The review suggested that zuclopenthixol acetate may result in less forced injections, where someone may need to be restrained so as to have the injection to calm down.  Low doses of the drug (as low as 25mg) may be just as good and effective as higher doses (up to 100mg).    

Thursday 24 May 2012

Crisis Intervention for People with Mental Illness

Read the most current research of Cochrane on Crisis Intervention.

Crisis care, where support is provided during a crisis for service users (either in their home or a community setting) was found by this review to provide a package of support that was worthwhile, acceptable and less expensive.

Read the full summary here: http://summaries.cochrane.org/CD001087/crisis-intervention-for-people-with-severe-mental-illnesses

From a service user perspective (SUPER), it is vital that psychiatrists and community mental health teams explain the need for crisis care, so that service users know they will be supported in a non- intrusive and flexible way. 

Evening, weekend, out of hours and crisis telephone services have become increasingly common and promoted, making crisis care in the home better, more flexible and therefore more personalised to the needs of service users. 

Attrition rates (service users who opt out or stop their crisis care) also need to be focused on to evaluate different packages or types of crisis care, their effectiveness, what packages of crisis care work best for service users, their families, carers and community mental health teams and begin to ask why some service users drop out from this sort of care. 

There is also the issue that crisis care can place more burden, stress, workload and burnout on community mental health teams, which is particularly a challenge at a time when health and social care services are facing budget cuts and already being overstretched.

Benjamin Gray,
Service User and Service User Expert,
Rethink Mental Illness.


Wednesday 23 May 2012

Cochrane Schizophrenia Group- Web Home Page

Find all you need to know about the Cochrane Schizophrenia Group here at their website homepage:

http://szg.cochrane.org/

Life Skills for People with Schizophrenia

Want to know more about Life Skills Programmes to help people with schizophrenia and mental health problems?

Having a mental health problem can cause difficulties and obstacles in all areas of life, even those as simple as washing, shopping, talking openly with other people, brushing teeth, cleaning the house, managing money, making friends, shaving and being independent. 


Life skills programmes attempt to remedy some of these difficulties by encouraging independent living, so enhancing quality of life.


Read the full summary here: http://summaries.cochrane.org/CD000381/life-skills-programmes-for-chronic-mental-illnesses.

From a more directly service user perspective (SUPER), the experience of mental health problems (such as hearing voices and seeing things) and the sleep- like quality of many medications, often combine to limit the quality of life of service users or their ability to live everyday and fulfilling lives.  According to Suman Fernando, an eminent academic and psychiatrist, this can lead to people becoming “zombie- like” and institutionalised.  In the words of a service user:

“I’m hardly able to stand up, hardly able to walk, hardly able to talk, hardly able to wash, get dressed or even brush my teeth”. 

In order to try and lead better, more fulfilling and active lives (which break the vicious cycle of getting out of hospital only to be re-admitted again during a breakdown) a variety of approaches (including life skills, occupational therapy and peer support) will almost certainly be the way forward in the near future.  Life skills not only help service users establish some degree of independence, but also relieve the burden, work and stress often placed on family, friends and carers. 

Finally, the review focuses on ‘chronic’ or ‘severe mental illnesses’.  Other less severe mental health problems, such as depression, may be better suited to life skills.  By way of contrast, mental health problems for the elderly, such as dementia, have greater and longer-term needs of personal care (such as washing, grooming, feeding and toileting).  This limits or makes void the need for life skills training for people with dementia, but perhaps not for their carers.  Carers often bear the burden, stress and unpaid work of round-the-clock care, so training in life skills and peer support may help this often excluded, isolated and hidden group.     

Benjamin Gray,
Service User and Service User Expert,
Rethink Mental Illness.



Hearing Voices

Here is my story of hearing voices that appeared in the Guardian:

Hidden Demons: http://www.guardian.co.uk/society/2007/jun/15/socialcare

Academic Benjamin Gray recalls his experiences of dealing with voices that other people could not hear.

Among the people I met during my time there was Rosemary. The last time I saw her she was waiting to be discharged from the hospital. She had no one to go home to, just an empty house.

Rosemary was an unassuming, quietly spoken woman, unremarkable apart from an air of sadness and loss. Rosemary had told me and many of the nurses that she would be better off dead than hearing any more of the terrible and taunting voices that kept her from sleeping. Better up there with her mother in heaven, she told me, then down here in the hell of the psychiatric ward with her voices.

Within a few days of being discharged, she was with her mother again. The nurses called a meeting in the communal lounge. There had been an accident. Rosemary had thrown herself in front of a train. The girl next to me at the meeting broke into tears.  It felt like it could have been any of us.

Night after sleepless night and through the long, seemingly endless days on the ward, where smoking and TV stood in place of any attempt of therapy, I and my fellow patients experienced similar feelings to those of Rosemary, feelings of loss, isolation, pain, confusion and helplessness.

"You're alone," an insidious voice told me. "You're going to get what's coming to you."

Joy was different. She was a mother of two autistic boys and had a loving husband who would visit her every day and brought her cigarettes, the social currency of the ward. There was always a glimmer of hope in her eyes, despite the voices that urged her to set herself on fire and despite seeing people covered in snakes.

Then one evening, as the nurses dispensed medication while we lined up zombie-like, I found her in hysterical tears. She told me about the voices and the serpents. I held her for a moment, trying to comfort her, as the nurses were doing nothing to calm her down. I said it would all be all right and there was always hope.

"You're going down there," a voice that sounded like Joy's hissed at me. "You wait until you see what I'm going to do to you."

No one moved or looked startled. It was just me hearing the voice. I tried not to answer it. Better to ignore the voice, repress it and soldier on, I thought. I had seen others screaming back at their voices, and it had left me with feelings of consternation, pity and fear.

I didn't want to look mad, like them. Any symptoms of hearing voices would go on medical case notes, be raised as proof of insanity and keep me locked up in the hell of the ward away from family, friends and what seemed like a long-distant normal life.

I learned several important lessons: never admit you hear voices; certainly never answer them; do exactly as you're told by staff or concerned family or you'll be seen as ill; never question your diagnosis or disagree with your psychiatrist; be compliant and admit your mental illness or you'll never be discharged.

All the time the voices got worse. "Hot fire in your eyes!" shouted a voice to me in the ward.

There is little study of what schizophrenics' voices say to them, which would make people's experiences more valid and meaningful and also lend itself to a more human account of mental illness. People's experiences of hearing voices are silenced, which can only augment ignorance and fear, both in society and in the mental healthcare system.

To make matters worse, it is almost impossible to talk with other people and relate the pain that voices inflict when they are raging inside you and shouting you down.

John was a child of the 60s and hadn't seen his family for twenty years. Because of his voices they had disowned him. "Nobody cares," said a sad voice in John's intonation.

Welcome- Ben Gray (Rethink Mental Illness)

Welcome and Introduction!

Welcome to the first blog of Ben Gray, Service User Expert at Rethink Mental Illness.  We will be showcasing our work with the Cochrane Schizophrenia Group at the University of Nottingham.

This is my personal blog and perspective.  It does not necessarily reflect the views of Rethink Mental Illness and the Cochrane Schizophrenia Group.

You will find links to lay summaries of the latest Cochrane research and also my service user perspective (SUPER), adding relevance and lived experience.